Showing posts with label loss. Show all posts
Showing posts with label loss. Show all posts

Tuesday, July 5, 2016

More Frequent Check-Ins

So Sunday afternoon I almost went to the hospital because I hadn't really felt baby give any good kicks all day, or the night before. I  got dressed, decided I'd doppler her just to make myself feel better and she kicked the doppler off my stomach, and then went ballistic. So I did not go to the hospital.

My husband noted that we have a pattern. It's two days of movement, one day of quiet. So I'm going to start logging on here more frequently so I remember where we are in this pattern.

Friday July 1 - Lots of movement
Saturday July 2 - Movement in AM, quiet in PM
Sunday July 3 - Quiet almost all day
Monday July 4 - Movement almost all day
Tuesday July 5 - Movement in the AM, and overnight
Wed July 6 - Hardly any movement in the AM

This isn't really helpful to anyone but me, but so be it!!

Wednesday we have our first NST (non-stress test). I am excited to go in and hear her heartbeat for 30 minutes. I am going to ask if she'll write me a note to wear tennis shoes to work. My hips have been pretty brutally painful. It's my left buttock, and it pulls sometimes so bad I almost fall down. I will also be calling the chiropractor. Even though she charges like $75 dollars, I think it will be worth it to go and get things adjusted. Probably next week.

The following Wednesday we have our next growth scan, a non-stress test, and then an appointment. I'm thinking I'll take the whole day off work and use the afternoon to work on getting our house organized. OR I'll just take a half day, and take a full day after the next ultrasound day / after the shower when I can put stuff away and do laundry. That makes more sense. Especially since I'll want to come in and work on projects.

I've officially created a countdown at my desk. 35 days left (give or take 1 or 2) until her EDD. Which means I have 35 days to get every project I'm working on wrapped up, the temp trained, and my desk essentailly cleared out in case anything happens while I'm gone (they move me, they fire me, etc.)

I also found my FitBit, and I'm going to start wearing that. I've been having daily headaches, which I think is from looking at my phone too much, but just in case we're getting Pre-E signs, I want my heartrate being tracked.

So yea, that is what is up, more posts to come!! Oh, and later this week I will post about Scrumbles, because he has been on my mind so, so very much lately as we approach the year of our losing him. My heart is heavy.

-Em

More Frequent Check-Ins

So Sunday afternoon I almost went to the hospital because I hadn't really felt baby give any good kicks all day, or the night before. I  got dressed, decided I'd doppler her just to make myself feel better and she kicked the doppler off my stomach, and then went ballistic. So I did not go to the hospital.

My husband noted that we have a pattern. It's two days of movement, one day of quiet. So I'm going to start logging on here more frequently so I remember where we are in this pattern.

Friday July 1 - Lots of movement
Saturday July 2 - Movement in AM, quiet in PM
Sunday July 3 - Quiet almost all day
Monday July 4 - Movement almost all day
Tuesday July 5 - Movement in the AM, and overnight
Wed July 6 - Hardly any movement in the AM

This isn't really helpful to anyone but me, but so be it!!

Wednesday we have our first NST (non-stress test). I am excited to go in and hear her heartbeat for 30 minutes. I am going to ask if she'll write me a note to wear tennis shoes to work. My hips have been pretty brutally painful. It's my left buttock, and it pulls sometimes so bad I almost fall down. I will also be calling the chiropractor. Even though she charges like $75 dollars, I think it will be worth it to go and get things adjusted. Probably next week.

The following Wednesday we have our next growth scan, a non-stress test, and then an appointment. I'm thinking I'll take the whole day off work and use the afternoon to work on getting our house organized. OR I'll just take a half day, and take a full day after the next ultrasound day / after the shower when I can put stuff away and do laundry. That makes more sense. Especially since I'll want to come in and work on projects.

I've officially created a countdown at my desk. 35 days left (give or take 1 or 2) until her EDD. Which means I have 35 days to get every project I'm working on wrapped up, the temp trained, and my desk essentailly cleared out in case anything happens while I'm gone (they move me, they fire me, etc.)

I also found my FitBit, and I'm going to start wearing that. I've been having daily headaches, which I think is from looking at my phone too much, but just in case we're getting Pre-E signs, I want my heartrate being tracked.

So yea, that is what is up, more posts to come!! Oh, and later this week I will post about Scrumbles, because he has been on my mind so, so very much lately as we approach the year of our losing him. My heart is heavy.

-Em

More Frequent Check-Ins

So Sunday afternoon I almost went to the hospital because I hadn't really felt baby give any good kicks all day, or the night before. I  got dressed, decided I'd doppler her just to make myself feel better and she kicked the doppler off my stomach, and then went ballistic. So I did not go to the hospital.

My husband noted that we have a pattern. It's two days of movement, one day of quiet. So I'm going to start logging on here more frequently so I remember where we are in this pattern.

Friday July 1 - Lots of movement
Saturday July 2 - Movement in AM, quiet in PM
Sunday July 3 - Quiet almost all day
Monday July 4 - Movement almost all day
Tuesday July 5 - Movement in the AM, and overnight
Wed July 6 - Hardly any movement in the AM

This isn't really helpful to anyone but me, but so be it!!

Wednesday we have our first NST (non-stress test). I am excited to go in and hear her heartbeat for 30 minutes. I am going to ask if she'll write me a note to wear tennis shoes to work. My hips have been pretty brutally painful. It's my left buttock, and it pulls sometimes so bad I almost fall down. I will also be calling the chiropractor. Even though she charges like $75 dollars, I think it will be worth it to go and get things adjusted. Probably next week.

The following Wednesday we have our next growth scan, a non-stress test, and then an appointment. I'm thinking I'll take the whole day off work and use the afternoon to work on getting our house organized. OR I'll just take a half day, and take a full day after the next ultrasound day / after the shower when I can put stuff away and do laundry. That makes more sense. Especially since I'll want to come in and work on projects.

I've officially created a countdown at my desk. 35 days left (give or take 1 or 2) until her EDD. Which means I have 35 days to get every project I'm working on wrapped up, the temp trained, and my desk essentailly cleared out in case anything happens while I'm gone (they move me, they fire me, etc.)

I also found my FitBit, and I'm going to start wearing that. I've been having daily headaches, which I think is from looking at my phone too much, but just in case we're getting Pre-E signs, I want my heartrate being tracked.

So yea, that is what is up, more posts to come!! Oh, and later this week I will post about Scrumbles, because he has been on my mind so, so very much lately as we approach the year of our losing him. My heart is heavy.

-Em

Thursday, June 23, 2016

Friday Growth Scan Anticipation...

I'll admit it, the majority of this pregnancy I have mostly been scared.

Now that baby girl is giving me good movement with somewhat consistency and we've had my OB look at an US and tell me everything looked okay, I am starting to get excited, and honestly? Breathe a little. As long as nothing happens internally, if she pulls the evacuate cord, we'd most likely be okay.

So, knowing that tomorrow my husband and I get to go look at our baby with an ultrasound technician and see how she's growing, I am starting to get excited. Is this how most women feel the majority of their pregnancies? I haven' really anticipated an ultrasound with excitement--mostly just trepidation. But this? This is a much better feeling.

I'll have more updates tomorrow, but for now, I just want to kind of reflect on things. I will be 31 weeks tomorrow, and my mentality about this is starting to shift, so I think  I should log a bit of what is going on around me.

1. My old boss from London made a comment on a picture I posted of our nursery. "Yea... you're never going back to London, are you?" Little sassy pants. What I wanted to say was "Fuck off, that's mean and you're being a jerk." but after reflecting on it a bit, what I really feel is.... "Sometimes in life, you have to stop spinning your wheels in the mud. Sometimes you have to stop looking backwards, and forge a path forwards." I was so stuck in my cycle. "MUST GET TO LONDON!" that was my battlecry for SIX years. And guess where it got me? Nowhere. What I've learned is that to get somewhere that special, you have to work your tail off and earn it. Sure, I could pay $50,000 to go get a degree there, spend a year overseas, and hope that in the end someone will pay for me to stay. Or I can keep putting in my time, building my resume, and become a strong enough candidate that someone will actually pay me to go over there. So yea, my plan is still to live abroad. But I'm taking a different approach to it. And in the meantime? I'm not giving up on other things I think are important in life - a family. stability. What I tell myself is that I can always learn new technologies and how to animate 3D and edit video on the next program if I already have the basic storytelling skillset. But I can't always have a baby. So I've charted a new path. And it took me about 2 days of crying over that stupid comment and reflecting and hating myself for the decisions I have made to come to the conclusion that I wouldn't have done it differently.

2. My mom and dad got the most ADORABLE puppy yet to be named.  Ilove him so much, and I think he and Freya will be best friends.

3. The baby room is painted and my mom is working on murals of carousels for us. Making plans a reality scared me at the time, but now I am just happy it is ready for her. As a side note - the Secure Beginnings Breathable Crib Mattress is amazing? But it doesn't fit in our fancy crib. The bars are too thick. So we're going to have to modify the crib somehow. I will let you know how we do that.

4. My husband doesn't want anything to hurt the baby. He doesn't understand how Pack n Plays have bassinets, so he thinks when I say she'll be in a Pack N Play the first few weeks she'll be on the floor. His decision was to sleep on the floor and put her on the bed. I love him so much. He loves her so much. It's adorable.

5. One of  BFFs who had a baby in March is giving me a bunch of her supplies that baby didn't use. I am pumped, because we can officially start swapping baby stuff. She thinks she might get pregnant again soon, and I love that, because we'll just continue to hand stuff over as our collection grows. I never thought I'd have friends who would be willing to share, or open to it, or have babies around the same time as us, but now it's happening. God is good.

6. My manager hired a temp for me while I'm out. This is a HUGE honor (in my mind) because it shows I am needed. I get to train the temp in July, and I cannot wait. Training is one of my favorite things to do. I do believe some day I'd love to teach... but that is besides the point. The point is, I am thrilled to have a temp. I hope we work well together. I hope they don't love her more than me ;) I hope she and I work well and we train well together. And it will be a huge relief to have someone else helping out with the way my mind is working now (not so great). And also when my weekly appointments start getting to be a lot of time.

7. I had another miscarriage dream the other night. The anniversary of losing Scrumbles is nearing... July 31. I can't understand why, but I look back on that time following with fondness. My husband and I grew as a couple. Despite the bone-deep excruciating pain and grief, it was a time of self healing. We took care of eachother. We fixed ourselves in a lot of ways. The nights we'd have a few drinks and be in love. The hours of watching funny tv shows and laying in our dark apartment doing nothing... While it was a bout of depression, was also a bout of healing. In some ways, I miss that tiny old apartment. Where we had so much loss and grief. Because it was there that I finally found out how to put myself first. How to self-heal. And how to do what I wanted to do, instead of what everyone around me wanted me to do. Maybe it made me more selfish, but I think I was due some selfishness. And while I don't want to go back to that, trust me, I want this baby healthy and alive, I do have some of the fondest memories of that time. Of letting the cold air of the window units wash over my broken body, as I'd read my bible and think of the future we lost. The excitement at the weirdest things, and the anger. Those emotions-they were new. And I am so glad I felt them and experienced them, because it makes this baby all the more precious to us. It makes the process seem worth it. I've seen the lows. The crushing feel of loss, and now, I can feel my daughter running her fingers along my pubic bone, and telling me she likes donuts and cakes *duh, she's my kid* and I can value the pain even more. Every single second we spend with her (in my womb, and hopefully out) will be cherished. Because I know what it means to only have those few weeks, months, days. And they are sweet and special.

8. I want to get a tattoo for this little girl once she is here. I think it will be a thin pink line wrapping around her brother's feet to make a heart. I'll post pics when I finally decide on art, and when we go to get it.

9. Finances - suck. We are broke as a joke. This is going to be difficult. I am very overwhelmed about the amount of projects our house needs and what this baby will cost and how expensive our lives are with my husband in school. But I also feel confident we can do it. As long as we get ourselves in check and start prioritizing getting out of debt. I listen to Dave Ramsey weekly, trying to get a handle on a plan. And we are just putting every extra penny towards the baby or towards our debt. I am officially chopping up all my credit cards tonight except for one that will be used as an emergency card.


Anyways, there's more, but that's just a summary. Today, my heart is at peace (mostly because I killed a cricket that was keeping me awake all night, and finally slept for the first time in two weeks.)

-Em

Monday, April 4, 2016

Sigh.

If anyone out there reads my blog regularly, I think by now you can tell I'm a little neurotic. Not in a scary way, just in an anxious/nervous/overly invested way.

I just... I feel like the baby has died. I know that's so unhealthy. I feel like she is gone constantly. I am always checking for bleeding. I have to stop this thought train, or I am going to will it to happen. I think as we get closer to our 20 week appointment on Friday, the anxiety is just going up, up, up.

I am in the process of finding a counselor for this stress that works with our insurance plan, and just trying to keep myself calm in the meantime. I am so fearful. Saturday I just cried for half the morning because I don't feel like my body can do this. It has failed once, and now that this baby can hear, feel, move and poke me, I am so scared of letting her down because my body can't do it. If that makes any sense.

So yea! That's exciting. I wish I was stronger. I used to be this strong, fierce independent woman. And now, I feel like curling up in a ball is the extent of my abilities. I don't really know when it changed. I think when I came home from traveling abroad and couldn't find work in my field for years. When I let fear dictate my decisions. I think that's when I switched mentality from lion to fieldmouse.

So, this is deeper than a miscarriage or a loss (which wasn't very long ago, I do think waiting is probably better... but alas, here we are.) But all of those emotions are all merging into one giant stressball. Sigh. I can't wait for Friday. 20 week milestone, a  day off of work, and our anatomy scan, check up, and glucose test. I think after that I will feel better. I hope so.

For the past week my abdomen has been so tight, and this morning I woke up and it was flabby again. These changes are normal, but I am so mindful of what is going on that I notice EVERY slight change. This friday I will be running through a list with my doctor and letting her know about my anxiety/stress. I also lost weight again, so I am down 2 lbs from where I started in this whole process. I know I am SUPPOSED to be losing weight, but I also don't have a tummy yet. All of these (even plus size) women I see at 19 weeks are HUGE, and I have nothing, I just look bloated. Maybe it's because I've ridden horses my whole life and those muscles are pretty strong (they are) but it doesn't help me feel better when I have no symptoms, weight loss in the second tri, can't 100% identify movement, and no baby bump.

It might be time to get back on something to calm me down through the final months of this process.  We are a little over a month away from third trimester. You'd think I'd be calming down.


Here are some mantras I found that are helping me stay grounded:




Monday, December 14, 2015

Holiday Blues :(

Friday was an interesting day. Friday was a day that I think I might have hit rock bottom in my life - physically, emotionally, financially. 

With the buying of the house, we are reassessing our finances, and I am seeing just how much money I have spent over the past three months trying to fill the void in my womb with... "stuff". Skirts, clothes, trips, chairs, furniture, food, anything that isn't baby-focused, I am buying it. We are so in debt right now. It adds up so quickly--doctor bills, medical bills, house assessments, inspections... it all went on the credit card as we saved money to pay for the house. 

So, we are in debt, it's Christmas, our monthly payments are about to double, and we planned this trip to Ireland on a lark, that now we are mostly just dreading because we have to pay for it. I feel sick to my stomach. 

Speaking of stomachs, I am eating like a cow. I mean, just filling my stomach until it is tight and then stretches out again.I'm always hungry, and I've now peaked at 300 lbs .... I am back down to 296, but "down to 296" doesn't really seem like a positive set of words to me. 

The Chris Powell plan I was doing worked really well, but then my 'accountability partner' never started, so I was on my own, and of course the machine took back over. I am hoping to start it again once I am positive we are not pregnant again. (torque and jumping around with a potential pregnancy seems dangerous since hematomas are so questionable, i am just trying to stay calm and low-key). 

Anyways, Friday I realized I should be 8 months pregnant. I should be huge, with a big belly, and everyone taking bets on what day I am due. But instead I made a massive mistake at work that cost us a lot of money, my husband and I are constantly on edge with each other, and I feel so utterly worthless as a woman as I am reliving the events of July 31st with vivid clarity.  

Nothing I do seems successful. I am seeing myself as a total failure. Apparently a side effect of progesterone is "worry" and "depression" and I can say that  I have definitely felt those emotions amp up. But it could also be the holiday season. Everyone I know (I know that is hyperbole, but since I am 27 and most of my friends are just now married/newlyweds, it's not far off) is pregnant or posting their one-month-old baby pictures. So Friday night I was an utter mess. The sobbing--it was the raking, choking, whole body shaking sobbing--from July. I felt utter despair. I was lost. I am lost. I am spinning my wheels. My brain is officially burning more calories worrying and thinking about things than my body is working out. The calm I found over the past few months of controlling my food and exercising daily is gone and replaced with what I can only describe as the "worst version of Emily" I have ever seen. 

I have also been taking pregnancy tests like a crazy maniac. They are, of course, all negative. Not only was it too soon, but we also missed the most fertile window, and the odds are so slim. That being said, my BBT (which should be dropping dramatically as we head into AF time) is rising steadily, and it is as high as it was when I was pregnant. So I am confused, and hopeful, and scared, and concerned that I'm not doing the right thing. Then add on house stress, and the weight gain.

I don't know. I am just so unhappy with how weak I feel. My husband did not marry this woman. I was not obsessed with babies, and I certainly didn't weigh 300 lbs when we met. And I don't think I'd like myself if I met me. But it seems so hard to change. So hard to get my mind back on track. How do I get it to stop careening down a path to self destruction? 

I guess all we can do is try harder, and stop worrying about a. what other people think and b. about failing. That is all I can do. I want to pull myself out of this hole, but it is quite dark and quiet and cozy down here. So I might just leave myself here until Christmas has passed. 

-Emily

P.S. I cried at a Target commercial. A TARGET COMMERCIAL. 
P.P.S. I cried at the Thanksgiving episode of The Goldbergs. My hormones are a wreck. 




Wednesday, December 9, 2015

Seeing Things

So, I am not sure if I ovulated on Tuesday or Thursday, but depending, I am either 8 or 6 DPO (Days Post Ovulation) 

I took a FRER (First Response Early Response) just... because I am a nutcase and I find it fun. The test was negative, OBVIOUSLY, but then I started playing around with the color settings (which is what we nutters do when we test too early) and I swear I see a line.

I understand this could be a. my imagination b. the camera picking up on the antibody dye that is used there c. evaporation lines - the lines that turn pink when testing then fade.

Anyways, regardless of the outcome, I think it's super fun, and the waiting is a big game, and I love this part. So here ya go, make your own decisions! ... :) 

No tweaking done to this test, it is just what I see (a big fat NOTHING)

Tweaked with a different contrast/lighting.... is there a line there.... is it a ghost line.... is it signs of what is to come? I guess we'll find out in a week's time. :)

-Emily

Monday, November 30, 2015

It's a new dawn, it's a new day, and I'm feeling good.

I will tell you one thing about charting cycles--there is very little mystery leftover once you are counting down hours to ovulation. I can absolutely see how OBs tell their patients struggling to conceive to stop worrying and just have fun. Once you realize that your female reproductive system is *TYPICALLY* a well oiled machine, the chance of it going off track becomes less and less.

I preface this post with that, because my husband cracked under pressure, and we momentarily lapsed in our "abstinence until Ireland" (not exactly abstinence, but you get my point). But since I know my chart like the back of my hand, I am 90% certain there is no chance of conception. Not like I'm rooting for it, as you know, there is a lot on my plate right now, but it is kind of ... boring (that's not the right word at all)... comforting? predictable?? knowing your body's rhythms. We are just about 3 days shy of it being even a slight chance. 

Anyways, that's not what I'm here to talk about today. I'm here to talk about preparations for ttc. And since we are playing with fire, I have no fully loaded on the primary conception plans-

  1. aspirin
  2. prenatals
  3. vitex
  4. glucosamine
  5. vinegar 
  6. cinnamon
  7. Progesterone 1 day post ovulation


In January, I will add back in Cayenne pepper and wheat grass, as well as start drinking my nettle tea each morning. 

I did end up calling the specialist, and they confirmed my phospholipid panels all came back negative. So, according to modern science, there is nothing wrong with me. I am not so convinced. I just found out a friend of mine from one of my hematoma boards who lost a baby at 20 weeks to a SCH was diagnosed with not one, but two hematomas in her current pregnancy. There is a chance they will break up and disappear, as that is the more common outcome for women, and those of us who have lost because of it might just be more sensitive to their appearance. But I think that, when it comes to bodies, there is so much science we don't understand yet, and this is a highly under-researched condition. And I do not believe they are flukes or chance. She was on all of the medicines I am taking, she took all the precautions, and yet here we are, more hematomas. More question marks and fear in a pregnancy that should be a boring 9 months. I will keep researching and putting what I find here, but I am not convinced that because I tested negative for phospholipid clotting problems or Leiden Factor V that there isn't something else going on. I guess we'll find out in my next pregnancy if we get another SCH. . . and the pregnancy after that... and the pregnancy after that. 

I also wanted to share something weird with you. Due to current work conditions, house-buying conditions, and other stress factors in my life, I developed an eye spasm last week. It was pretty bad, and it comes and goes when I am in stressful situations. So I was reading about cures last night trying to find SOMETHING to help. I stumbled on a blog of a girl who was told by her eye doctor to try Tonic Water. She said it cured hers, and any time it flared up, she'd drink tonic water and it'd stop. Tonic Water has quinine, a smashed up bitter root that is considered a muscle relaxant. Well, my husband brought home diet tonic water, and I drank half the bottle (after a. a glass of wine to relax me further and b. filling it with Mio cause tonic SUCKS) and no twitch today! It's also my first day back at work in a stressful environment after Thanksgiving and still no twitch!!! I will finish off the bottle tonight. So there you go - a life hack. Tonic Water = Kills Eye Spasms.

Alright, it's cyber Monday. Off to go find some deals and cross off Christmas lists. 

-Emily

Wednesday, November 18, 2015

Well hello there, November.

Tut tut, it is mid November and I am way behind on my life goals. I don't know how I got so derailed from my  "LOSE WEIGHT!" "TAKE SUPPLEMENTS!" "WORKOUT!" goals, but perhaps it is crushing depression, an inexplicable fear of success, and distractions.

Or maybe I'm just lazy.

That all being said, it is mid-November. Which means, you guessed it! We are ALMOST THERE for TTC THB #1 (read: Trying to conceive Take Home Baby #1). My husband and I agreed on January Ireland trip to start trying again. So now I am ready to start prepping my womb, body, mind and soul for the journey we are about to undertake. 

Step 1: Negativity be-gone
I have really struggled this past month to not hate myself and what I do. Counseling helps, but when you are your biggest antagonist, and you live with yourself 24/7, it is hard to keep positivity up. I have been reading some psychology magazines and articles, and I am pretty sure I suffer from a condition called "doesn't ever vent anger, so bottles it up and makes herself into a victim". That is a real thing, I swear! If you have no means or outlet for anger, you try to justify and rationalize the feelings. When you do this, you internalize everything and start thinking that everything is unfair to YOU (well, me). "My friends all had babies successfully" "My friends all are able to lose weight without struggle" "No one else struggles financially" ... I must just have a bad streak of luck. Well friends, that is not true. I have an amazing husband, an INCREDIBLE family, a wonderful support system of friends. I am not a victim in any way except to myself. These next few months will be spent healing and trying to soften the blows of the punches I throw at myself. And also trying to emotionally get excited for this process and the nine month (hopefully) pregnancy. I have continually written on here that I don't feel like I'll ever get a take home baby. And maybe not. But we're going to try to be as positive as possible going forward. 

Step 2: Fixing My Body
It needs 30 days for most people to form a habit. But for me, I can't seem to get past about 14 before something 'epic' and life-changing happens that makes me want to celebrate with food. And instead of nudging myself back in the right direction, I go all out and stop exercising and eat McDonalds. That can't be my strategy going forward. For the next two and a half months everything I do needs to be done for me and ALSO for the baby. Because I'm not just eating Lays potato chips for me, but also I'm creating the future home of our child, and I need to protect my body as much as I would protect our baby. 


Step 3: Facing fears
I am not strong sometimes. I will admit that. I am a submissive person by nature. I have a big personality, but my instinct is to duck and run when danger or confrontation arises. But I am realizing that those responses show a disrespect for myself, and I am NOT stupid or incapable. SO I am going to take Papa Roach's advice and Face Everything and Rise. (Papa Roach is my muse, I guess).  Facing fears will involve tackling certain tasks that I have been avoiding, confidently and outwardly addressing problems I have with people face-to-face at the time it happens, and making sure I fix myself up to prepare myself for all of these situations. A good friend of mine told me to get some new work clothes so I feel confident and powerful. I tried getting dressed up today and it worked. I do feel stronger (it could also be the Starbucks frappucino, but I am hoping it's also the clothes and shoes). So, a trip to JCP during their big sales is in order. Even though money is tight, I need some superficial confidence to get through these fear-facing moments. And trust me, I'm a very timid person. 


Step 4: Supplement party
I've listed here before what I plan to take as we start to try again. Starting now through January, I will gradually be adding back in the full regime so those little zygotes have a strong foothold in the world. 

November
Multi-vitamin prenatal
Glucosamine (for my knees, not for baby) 
Vitex (to lengthen my luteal phase) 

December
All of the above Plus
Vinegar (with the Mother - so it is actually potent, fibroids, general health) 
Switch to naturally occurring folate-filled prenatal (in case  I can't digest folic acid in its synthetic form)
Cinnamon (to counteract the glucosamine and regulate blood sugar) 

January 
All of the above Plus
Aspirin (to prevent clotting)
Wheatgrass (dunno, read it somewhere, worth a try to help body heal) 
Cayenne Pepper (another healing agent)

I will also start tracking my BBT (read: Basal Body Temperature) starting on CD 1 (read: cycle day 1, meaning first day of period) (which SHOULD be tomorrow). The tracking will help me understand when I ovulate, and the length of the luteal phase.


Luteal Phase Aside: The length of the luteal phase can effect pregnancies. If your body does not produce enough progesterone after ovulation, the zygote can't implant in the uterus successfully. The progesterone dries up and the uterus sheds its lining too quickly. This can be checked by monitoring your ovulation day with your first day of your period. If it is below 10 days, then you have a shortened luteal phase. (mine is appearing to be around 10, i think optimal is 12) I am fairly confident this hurt our pregnancy--the egg implanted, but pulled away because the lining was not thick enough, and my luteal phase was too short. I have been taking Vitex and it seems to be lengthening my cycle. However, I did not understand the importance of the luteal phase the first time around, and most of my BBT tracking disappeared (Glow Users - if you have a miscarriage and put that into your account, it will wipe all of your data. Which is just wonderful once you are already suffering.)  Aside Finished. 

After ovulation, I will take progesterone each day for nine days until my period. That will help the body produce enough progesterone to develop the lining of the uterus, but by taking it after ovulation you are not restricting ovulation (too much progesterone can tell your body not to drop and egg). 

My specialist has progesterone on order for me, but I also have some left over from last time. Hopefully the new order won't be vaginal, because I've watched a blog (with images) on that, and it gets pretty nasty up in thurr with vaginal progesterone. Yikes.

A note on Vitex - they say to stop taking immediately if you get pregnant, but story after story shows that women who took it several weeks into their pregnancy were fine and had no issues, and if they stopped taking it they lost the baby. It's a personal choice, but I think I will continue taking it until we get a successful "no hematoma" report. Praying for that day... 


Step 5: Not Caring
So, now you know that my day will be centered around tracking, tracking, tracking, and pills. Which kind of takes the fun out of the "T" in "trying to conceive". But don't worry, we are going to go about our lives and just be married. And have fun. I am definitely able to separate the two things, and it won't be an "OMG IT'S TIME" type situation. We're going to just enjoy life and see what it throws at us. My husband truly believes it will happen the first try again, but I am not convinced. Bodies don't work like that. So I think we'll realistically have until spring before this all works and I have any kind of positive. (but one can hope we get pregnant in Ireland with an Irish baby and we have the baby around Halloween - the best time of the year). 

Okay, that is all for today. I am going to also post a really interesting article about having sex all month even when trying to conceive. Apparently your body is distracted, or used to the semen, so it doesn't attack as hard when your cervical mucus 'ladders' are down. Also, another thing I will post is the BEST conception video I've ever seen. 

Emily








Thursday, October 8, 2015

5 Vials

It is a record. Today they drew 5 vials of blood. I went to a new testing facility (new OB=new facility). The girl was very good, and she let me lay down, or else I pass out. I didn't pass out! And she only had to stick me one time. We got the blood relatively quickly, but throughout this whole process, we have never drawn five vials before. Not even for the genetic screening! (That was 3 vials, and that was also a challenge.) 

Anyways, the blood draw went fine, but I thought I'd share with you what they are testing for in those five vials. 

1. Cardiolipin AB Screen
http://www.hopkinslupus.org/lupus-tests/antiphospholipid-antibodies/ 
Testing may also be ordered when a woman has had recurrent miscarriages and/or ordered along with lupus anticoagulant testing as a follow-up to a prolonged PTT test. When cardiolipin antibody is detected, then the test may be repeated several weeks later to determine whether the antibody is temporary or persistent. Moderate to high levels of cardiolipin antibodies that persist when tested again 6 weeks later indicate the likely continued presence of that specific antibody, which may be associated with excessive clotting or recurrent miscarriages. (https://labtestsonline.org/understanding/analytes/cardiolipin/tab/test/) 

2. Lupus Anticogulation 
Lupus anticoagulants are antibodies against substances in the lining of cells. These substances prevent blood clotting in a test tube. They are called phospholipids.
Persons with these antibodies may have an abnormally high risk of blood clotting.https://www.nlm.nih.gov/medlineplus/ency/article/000547.htm 
https://labtestsonline.org/understanding/analytes/lupus-anticoagulant/tab/test/ 

3. Anti-B2 Clycoprotein Antibodies
https://labtestsonline.org/understanding/analytes/beta-2-glycoprotein-1-antibodies/tab/test/


So, after a brief scan, these are all related, and all  clotting issues that cause recurrent miscarriages. This is a good thing, because I do know I don't have the Factor V Leiden clotting disorder, but these seem to be more common. 


I still stand by my initial response that these will all turn up negative, but I am glad we will know for sure. I'm pretty anxious about hearing back from the specialist. He should have results by next Monday, and I should hear from him mid-to-late next week. (Since it took me 4 days to get the balls and energy to go get tested.) 

Once I know more, I will share on here. I just met (through a Baby Board) a girl who was diagnosed with this stuff, and she was told to wait to try to conceive for 12 weeks, when they would do another round of testing. Hearing that would be ... heartbreaking. But maybe good. I don't know. I don't know how I'm feeling. After having a little more sleep, and some time to collect myself, I am feeling slightly better. Still exhausted - mentally and physically - but better. I feel like every time I start climbing out of the dark, though, my husband jumps back into the abyss. Will these roller coaster days ever level out? 

I don't know, just going to keep blogging and doing things to make life better.

-Emily


Wednesday, September 9, 2015

Things are weird, but life is moving along

So, I haven't written here since last week. It was Labor Day weekend, and honestly, I have been trying as hard as possible not to think about things. One thing people with anxiety do very well is ruminate. And that is one of my key stressers. 

As a follow up, last week my hCG levels were at 5.5. I started my period the day after I had the blood test done, (hooray!) and am now back to charting my Basal Body Temperature every morning. That was what I did last time we got pregnant (that was all I did) and it seemed pretty accurate. I am most interested in finding out if I am going to ovulate this time, or if I will have a non ovulated period. Does that happen? It sounded like it could on some of my boards. 

The wonderful nurse from the hospital called me last week, and we found out that the baby was buried, where he was buried, and how to find him. I want to go to the cemetery, but I also am a little scared to. That might not be a normal emotion. I just feel like I am starting to feel more normal, and going out there might bring a cascade of sadness/grief/self loathing back. I will definitely go visit him and his baby buddies ( they bury several babies in a small coffin together), but I just don't know when I will be ready. I am also going to wait to hear from my husband when he is ready, so we can go together. 

The burial did not bring as much closure as I thought it would, Probably because we were not invited and had very little to do with the planning. But I do feel a sense of calm and peace that he had a Catholic burial in a holy cemetery and is not alone. That he is wrapped in linen and at peace in Heaven. He is definitely the coolest baby in his group of babies, and the most loved for sure. (I might be biased ;) ). 

Now we march forward into cycle #2 post miscarriage. According to my charting, if we wait two cycles we could start trying again end of October. I do not think either of us are ready, and we still have so many medical bills and testing to do. I think we will realistically not be ready until November. Which means we get to try again November 11th. We also might be moving to a new place ( a house... with a yard, and a garage, within walking distance of my work ), and if that works out we will want to plan around moving so my husband doesn't have to do everything by himself. 

I am also currently weighing in at 297 lbs, so I need to get down somewhere where I feel at least more comfortable before trying again. We are easily 3 months out. I know that the majority of me is ready, but like I said, there is always fear associated with this after what we've been through. And we can't try again until  we are emotionally ready to face another hematoma. 

Our doctor appointment with the specialist is October 5th. I will definitely keep this blog updated with how that goes, and what tests I request from them. I will also get their feedback. Once my hCG is at 2, I think my original OB will talk to me about options. I hope so. I would like to stay with her, but I am not going to just "try again" without making some adjustments to what happens with my blood and uterus. I really hope she suggests testing too. Either way, I need to know what is happening.  If this happens again and we did nothing to prevent it I will feel incredibly stupid. If it happens again and we tried everything at least I can say "we tried everything". 

One exciting thing happened this week. I met a new friend who is around my weight/height/place in life and is trying to lose weight and get in shape. We agreed to hold each other acocuntable and meet up for the Flying Pig in May 2016. She lives outside of chicago, I live outside of Saint Louis. This so far has been a great motivator, and I'm really happy I found her. Life throws you funny curveballs and sets you on paths. This new path is very strange. 

I am finding new things out about myself. Things  Istruggle with and things  I excel at. I'm a little concerned about my job. I am seeing my work quality unbiased, and it's not great. I do worry my time will be short here. But I have found so many things I care about. Things I could do if this didn't work out for me. And I could be happy. I know  I could. 

Alright, my stomach is killing me, so I think I need to stop typing and go lay down. Not much longer until I get to go home and go to bed. 

-Emily

Wednesday, August 19, 2015

Still Backsliding, but at Least Not in an OR

Got the call today--hCG levels are at 24.3 seventeen days post miscarriage.

According to my OB, this is good, normal, and we are still on track. The goal is ultimately 2, but apparently this is progress (and also why my home PT showed positive). 

She has cleared me for all normal activities--swimming, Golds Fit, running, jumping, etc. I feel elated by that news. I am ready to hit the gym and give myself some kind of purpose again. I am all ready with my new Vera Bradley gym bag and umpteen Sparkle Skirts (you know, the skirts I threw myself into over the past 3 weeks as I awaited news in complete anxiety fashion). 

I am ready to get back to my new normal. I don't want to lose who I've become. I really enjoyed the strength of grieving Emily. I want her back. I need to channel that energy, strength, and inner peace. I need to remember not to take crap from people around me. To keep saying no. And to do things that make me happy. To focus on me, my desires, my body, and my health.

Guess what, bitches, this new life? It's mine. I'm claiming it. No one else gets it. My husband gets a say, my family gets my time and love. But I am the final decider of what happens. What I say goes. And what I say is that I'm tired of being a stepping stone for others. I'm tired of being kicked around and jerked around and generally tossed aside. I am angry, yes. But not at you. Not at my friends. Not at anyone except me. I've spent 27 years playing supporting actress in my life. It's time to step into the spotlight. I am no longer standing by. I am doing what makes sense. I am taking charge. YES, I need to slow down a bit as I run to the edge of this self defining cliff and leap, but I'm still leaping. For better or worse, I'm diving head first into the unknown of the future. 


I will apologize, but I will not ask permission anymore. 


And yes, our friends had their baby last night. I cried when I saw it. I am sad. Dammit, I am SO sad. And empty. But there's no where to go but forward. Hand-in-hand with my husband. There's no looking or going back. There's only the next month, week, day, hour, minute, second, and breathing and leaning confidently into the people we want to become. 

No surgery. Not yet. Time to start over. 

-Emily
Que sera sera. 

Tuesday, August 18, 2015

The week of the baby club, and how I am backsliding.

Our two closest couple friends are pregnant. My best friend is due Friday and my husband's best friend is due... right now. They are both having sons. Their sons would be the same ages apart from our angel baby as we are with our friends. We were going to have a built in baby group--our babies would have a group of boys to run wild with as they grew up. 

There is no hope now of our children being anywhere near close in age. They'll reach those pivotal milestones long before our future baby will. And maybe we'll get pregnant again (I hope so, anyways) when they are on their second babies. I don't know. 

But all of this happening this week, it just... makes my stomach clench up. And I feel sick. And sad. And angry. And empty. I feel like we'll never have a healthy baby. I can't imagine how those couples who lose two, three, four in a row and keep going. The strength they must have... I don't know how they endure the loss. I am feeling so discouraged right now. It doesn't help that my hCG levels are wonky, and I'm waiting on yet another call from my OB. For another possible week of surgery. 

So, I sit here, staring at my phone, dreading/looking forward to the moment we get the calls. The squirmy, healthy, angry little boys that are on their ways to us. The first picture of the proud mother and father, holding their perfect babies and the year they've carried them successfully. And I do not begrudge them that. or their happiness. I am not bitter, and I am very happy for them. I still have mixed emotions about whether or not I want to see their babies right away. I just don't know what I'll feel. I am not normally an "emotional" woman, but I do think that might not be the best move to make right now. 

Anyways, I know there is always hope where there is faith and love. But today, I just want to disappear and redo the past 6 months. I feel like a bad friend, but that's all there is to it. I'm just sad and feeling the loss today. 

-Emily

Thursday, August 13, 2015

I want to be pregnant.

We didn't have the easiest pregnancy. There was a lot of scariness, pain, and fear. But, I've never wanted anything more in my life than to be pregnant again. I loved having my little bean with me all the time. I loved having a secret world inside me. I loved having that connection with my husband, and how such a tiny little embryo changed our entire world. 

My husband and I were so happy. I felt ... important. Not in a self serving or self-fulfilling way. I felt like I was doing important work. Like my job was valued and doing it well was important. 

And I don't want another pregnancy to replace our angel baby. Because I know that will never happen. He is gone, and he was our first baby. The next babies will be our second, third, fourth, etc. children. But. All that being said, I want to be pregnant. 

I am praying we get back on "normalcy" this month, so we can try again this fall. And, God willing, no hematomas and a sticky baby. I want the ultrasounds. The blood draws. If it means a happy, healthy fetus, I want it back. I'd do it all over again. 

I know there are plans before it can happen again... my uterus cleaning itself out, my body getting in better shape, we really should even find a nicer living arrangement. But, my body is ready. I am ready. And I cannot WAIT until we get the chance to try again. Because this is what I was designed for. 

-Emily

Tuesday, August 11, 2015

Most of pregnancy is waiting

It is Tuesday, and we are 11 days away from 'that night'. The bleeding and cramping has officially stopped. However, my ultrasound on Saturday showed that my lining was still thick, and there were still... 'stuff' left in there. Whether its' blood or tissue, we aren't 100% sure.

Since my doctor is on the fence about a D&C, I had to have blood drawn again yesterday to test my hCG levels. If they have not gone down, that will be indicative of a problem. My OB mentioned that we might do a medicine that causes cramping/bleeding to try to get the remaining tissue out. But honestly, I would rather just do the surgery at this point. Medicine will put me another week away from "normal" and it might result in a surgery anyways. So.. I don't know. I don't WANT surgery, but I'd rather just know I'm cleaned out and ready to go. 

I feel like it'd be a fresh start my uterus.... is that weird? 

Also, it'd give the doctor a chance to look in there and see if there are any abnormalities. I know there probably aren't, but someone like me who worries, it would certainly be a relief of sorts. 

Something interesting happened to me at the blood draw place yesterday. I mentioned to the hematologist that the E.R. had told me I had "really high blood counts". Which, I guess, means high platelets. The very first thing out of the hematologist's mouth was "that is what causes clotting". Alarm bells went off in my head. Someone totally alien to the situation said a key word based on knowledge I learned from our first big bleed. 

I will definitely want to be tested again for any clotting issues. I am going to see if my OB wants to do that herself before we see the perinatologist. Fingers crossed she calls for those tests, because I'd really rather just work with her at first. But, we'll see. I'll do literally whatever it takes to try to prevent a hematoma ever happening again. 

Something else interesting is happening. In my marriage. I am feeling so broken. Everything hurts. Everything is damaged. My womb is empty, and I was unable to carry a baby to term. I have this feeling of worthlessness. And I spent the whole night last night trying to convince my husband he needs a new wife. And I meant it. I feel like a dusty old uterus who can't perform her female duties. I am so angry at my body for failing me. And it's potential to do it again. I wish I could go back in time and start trying to get pregnant at age 22 with my husband. Instead of 27. So far, I'm seeing no advantage of waiting. More issues, more question marks, we still aren't financially wealthy. I just want my body to work, and the failure is causing so many issues for me.

I think that's another reason the surgery would help. A clean slate. Start over, and a pinpointed beginning when I can take back 'control' of my life (I realize we are not in control at all, but it makes me feel better to pretend right now). 

So that's where we are at. I will post more once I hear back about surgery today. 

-Emily

Wednesday, August 5, 2015

Ultrasound Photos


Here you can see the crescent hematoma at 12 weeks. Baby was sucking his thumb. 


Hematoma when it was first diagnosed. 


One of the first images of baby. My sack is shaped very strangely... could it be fibroids? Could this have caused problems? 

"Normal"

As the days pass, things have started to make me smile again, even if for a second. My husband's jokes can lift my mood, and looking to the future is starting to seem possible.

But in those moments of happiness, or lightheartedness, I am overcome with such guilt. I lost my baby not even a full week ago, and can feel happiness. I realize that this is one of the topics people around me don't know how to handle if they have not experienced it themselves, so life goes on as normal, but I am just not ready for "normal". 

I am not ready to talk about my coworker's bad hair day, or my friend's weekend trip to the lake. I am not there yet. I need more time, and although I don't want to get stuck in this time in my life, and I DO want to move forward, I just feel like it's too soon.

The nurse from HeartPrints told me that I need to surround myself in a cocoon. Be honest with people. Tell them I'm not ready. Don't put myself in situations that are hard. Or if I am in that situation, leave. She told me to take care of myself. To treat myself in small doses, and as the hormones lessen and time passes,  things will feel a little better. 

I know it might be selfish, but I am allowing myself to grieve. I want to take as much time as I need to get through this. I have decided my next "Social Outing" will be a Halloween party thing in a local neighborhood with a bunch of women I don't know. No kids allowed. That is my goal for recovery. I know it's a while away, but I don't want to rush this.

I am not ready to forget him. I am not ready to forget what happened. I want to take time and cherish the new thoughts in my head. I want to understand how I'm feeling and address it. I want to cherish time with my sweet husband. I know that most of this post started with "I"... and I'm okay with that. 

-Emily
Trying to be gentle with myself right now. 
Missing the future my baby lost.  



Genetics

I am not a nurse. Or a doctor. Or a medical practitioner of any sort. My expertise is in marketing, entertainment, and writing.

However, since starting this journey to understand why my body failed, I have realized that I am for quite a bit of testing before we try again. On BabyCenter, there is currently a poll questioning if anyone women have any common health issues that might link us all together with these hematomas. 

So far, the only confirmed correlation I've found is a blood clotting disease. But what I keep hearing is a sense that autoimmune diseases can also cause the hematoma. Also, if there are any ... i don't want to to say abruptions, but abnormalities in the uterus. (Either from a prior pregnancy, fibroids, cysts, etc.) 


So, when we had our first big bleed on July 10th, the ultrasound technician saw a fibroid in my uterus by the baby. He did not seem concerned, but checkmark on one commonality. 

Wondering about my genetics, I have asked my mother to compile a list of her 'issues' she had (she also lost a baby in her 9th month....) Here is a list of complications she's had: 


1979 College – erythema nodosum 
1983 TMJ surgery – repaired cartilage in jaw
1985 Miscarriage – blighted ovum 12 weeks followed by D&C; followed by pulmonary embolism [hospitalization, several months on blood thinner]
1988 Healthy baby (ME!) born
1989 Baby boy stillborn ‘cord compression’ / cord damage or clotting?? in 3rd trimester @ 9 months
1991, 1995 Superficial thrombophlebitis left leg, right leg
1993 Deep vein thrombosis left leg
2001 Human parvovirus – was tested for lupus, Lyme, and probably some other things
2008 Dislocated /frozen shoulder – rotator cuff repair
2010 Deep vein thrombosis left leg, hospitalization and finally, diagnosis of Leiden Factor V
2013 Type 2 Diabetes


I may be missing something but I think this covers the relevant oddball things.   

So. Now we have some more evidence of things to look for. She was also tested multiple times for Lupus, which I have seen mentioned on BabyCenter. 

Prepare the gallons of water, because this October I am going to need lots of vials of blood drawn! 

-Emily

Tuesday, August 4, 2015

My Story - An Overview

My name is Emily, and I found out I was pregnant in May of 2015. My husband and I were overwhelmed... with excitement, joy, anxiety, nervousness, love. Every emotion you can imagine, we were feeling it. 

From the beginning, things felt off for me. I can't explain it. I had never been pregnant before, so I had nothing to go on. But I was never sick, and I had a nagging pain in my lower pelvis by my hip. Around week 7 I started spotting. Pink and light brown. There was no real trigger. Post intercourse, walking a mile, doing nothing -- it all led to spotting. 

My initial OB was at a very overworked office, and they were unable to make time to see me, despite my concerns. Between the pain and bleeding, I knew that I needed to find someone who was able to see me. Who knows, maybe if I had not interfered that early our baby would never have made it as far as he did. It might be a mixed blessing. 

After lying awake at night searching local OBs who would take new patients, I found the incredible Dr. W. She made time to see me, and on my first visit even did an ultrasound for me. (Unheard of, but she could tell I was panicky.) Prior in the year, I had started taking Prozac for anxiety attacks. I started a new job - my DREAM job - and was under a lot of stress to perform. Once we found out about the baby, I came off of Prozac. So I was already a little bit of an emotional wreck. Dr. W took me in for the scan and that was when my world changed even more than just being pregnant. She found a subchorionic hematoma. 

The SCH was crescent-shaped and cradled the left side of my sack. (Interestingly, it is on the side where my hip/groin had been hurting* asterisks will mark questions I have for future pregnancies.) The baby was BEAUTIFUL. Our little gummy bear. His heart was pumping along perfect for his size. I fell in love. 

With the advent of new technology, we are able to 'meet' our babies much sooner than we used to. There are pros and cons to this miracle. One con being that we fall in love that much faster with our unborn children. And in love I was. I took my little blip's photograph home and never let it out of my sight. The love shrouded my doctor's warning. She had handed me the delivery packet information with the advice "Maybe hold off on reading that until we get further along in the pregnancy." Okay, whatever, my sticky bean, as we had dubbed him, was perfect. The hematoma was a question mark, but I never truly let the concern sink in. How could a life so thriving be snuffed out by a little blood clot? 


I realize now, that at this point I had been set spinning like a dreidel. Slowly, unknowingly at first, but the initial inertia was put to my physical being, and seven weeks later, when my world came crashing down, that dreidel was spinning at full speed. 

Dr. W sent me to the phlebotomist that day to get blood drawn. She wanted to check my HCG and Progesterone levels. The following Monday, I got a call from a very concerned Dr. W.  I can remember the call clearly: 

"Hi Emily, I have some bad news. Your HCG levels are not raising like they should, and your progesterone is way too low. You need to go get a supplement for progesterone, I've put in the request at your pharmacy." 

But, the baby grew. We had harmony testing done.  He was a boy. No chromosomal abnormalities. I swear I felt him squirming around--he was so active! Around week 13, we entered our second trimester and a feeling of relief washed over us. We made it past the odds. Now the baby was growing big enough to squish that nasty blood clot, and save himself. 1% of miscarriages happen in the second trimester. We felt so safe, we even made the big family and Facebook announcement. 209 people liked the status. My husband and I have been married for three years, and together for nine. People were overjoyed for us. My mom even started getting little rubber ducky/ponies for the baby. 

A week later, the spinning dreidel had reached it's max speed and started to rock as it slowed. I had a big bleed at work. The largest bleed I'd ever had throughout the fourteen weeks. I went home and scheduled an appointment with my OB for the next day. (Since this was not my first bleed, I knew what we needed to do and when we should go to the ER. But things slowed down and it was alright.) The next day, I started feeling that icky, bloated feeling that comes with a big bleed. I  called in to work, unable to walk to the car without crying in pain. 

We saw Dr. W and the baby looked healthy. But the bleed had changed. The original hematoma shrunk dramatically. It looked like it had bled out. But since the SCH was on the top of the baby, it was bleeding around the side. A new pocked formed, and we could see it filling between the baby and the uterus. Our son looked irritated, as much as a 14 week old fetus can look irritated. But his heart was thumping away, so we went home and rested. 

The next day, I started cramping. Twisting, grinding, painful cramping with ten minutes in between each one. I know now that was labor contractions. Dr. W prescribed Tylenol and icing my lower abdomen. It helped, but the pain was getting severe (oddly, not as bad as some of my worst periods... I must have VERY bad periods!) That night, I told my husband that I felt like I was dying. I doubled my Tylenol intake and tried to sleep. Only to be awaked at midnight with the need to make a bowel movement. After ten minutes of trying, I gave up and laid back down. As soon as my head hit the pillow a big gush started. Something inside of me knew this was it. My husband was asleep, and I delivered our son by myself at midnight. There was a full, blue moon.

My baby was perfect. He was dead. But he was perfect. I will never forget or forgive myself for feeling the fear I had when I felt him coming. I was such a pansy. I will never, ever, ever forgive myself for not treating him with the respect I should have. I let my fear get a hold of me, and that will never happen again. 

The dreidel stopped spinning and fell. My world crashed around me. But the shock kept me from realizing what was happening. We went to the ER. I delivered the remainder of my placenta, and they gave me morphine and zofran for the cramping and nausea (the nausea was mental, not physical). 

It seems surreal. That night. If you told me we never went to the hospital, our dead baby in a towel on my lap, I would believe you. But it happened. And that changed me to my very core. 

At first, the relief was so great from the pain, and the shock/endorphines kept me from the horror of what happened. But, as anyone who has experienced loss knows, that fades and the grief sets in. It takes hold of you at the root of your heart, and it will never, ever leave. It might come and go in waves, or it might lessen, but the grief of losing a child is a forever thing. He is a part of me forever. 

The dreidel has fallen, and now I have seen that there is a new woman in me. I am changed forever. And part of this change is a desire to never, ever, ever sit by idly while this happens again. I want to work hard to find a way to keep this from happening to me, or to anyone. No one deserves this kind of pain. Needless, cruel, pain. 

We will try to conceive again. And this blog is where I will keep track of our story. If you are still reading after this, then please, I beg you, share your story with me. There is a community of us who have lost the battle to SCH, and I think a part of my grieving process is 'research'. Because I want to know everything I can about this killer before we try again. Join me in this journey. 

-Emily

Tired of feeling lost, tired of letting go.
Tear the whole world down, tear the whole world down.
Failure.
Drive the cloud away,
We will fall from last to none. 
The dark before the dawn,
The world will carry on. 
Look for the light that leads me home. 
"Failure" - Breaking Benjamin